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Deafness and hearing loss > acoustic neuromas

Paul Salinger 1
#1 Posted : Thursday, February 13, 2014 4:02:33 PM
Rank: Newbie


Joined: 2/13/2014
Posts: 2
Hi all recently had some bad news, my daughter has been diagnosed with acoustic neuroma. She is nineteen years old and has been back and forwards to the GP for the last 10 years complaining of earache and hearing loss. The Tumor is now 3 cms and she has been advised to have surgery. I am so worried about her outcome. She is based at uni in Sheffield and we are just going along with the local hospitals advice. Should i get a second opinion, obviously i want to get the best treatment available. What should i do? Many thanks Paul.
eightlegs
#2 Posted : Thursday, February 13, 2014 4:25:08 PM
Rank: Active Member


Joined: 3/17/2013
Posts: 156
Hi Paul, so sorry to hear the news about your daughter. I too have an acoustic neuroma, though mine isn't as large and was found by chance during treatment for another, unrelated hearing problem I have. (I'm 46!).

Generally 3cm is deemed medium sized but it is also what my consultant told me would be how big be would expect mine to be before it started to press on the brain stem. However every AN is different, exact location can be as significant as size.

My biggest recommendation to you however would be to go onto the British Acoustic Neuroma Association website for more information. If you become a member you can access the forums which have a wealth of information that can help you. The website is:

http://www.bana-uk.com/

3cm seems to be a significant point, over than and you are usually not advised to have radiosurgery but under it you may have that option - but only your daughter's consultant will be able to help you with that one. On a more positive note, Sheffield is one of the country's main specialist sites for acoustic neuromas - most of the radiosurgery is done there, it's where I would go for treatment when I need it, despite living on the south coast.

You may already have found them but in case you haven't the Sheffield hospital site has a couple of very good leaflets on small and large acoustic neuromas in the menu on the right hand side of this page:

http://www.sth.nhs.uk/ne...ffield-skull-base-group

I'm more than happy to answer questions but obviously I'm only a fellow sufferer rather than an expert but I'm happy to share what I've found out.

Sarah
Paul Salinger 1
#3 Posted : Thursday, February 13, 2014 6:21:25 PM
Rank: Newbie


Joined: 2/13/2014
Posts: 2
Thanks for the advise Sarah, i got the impression from the consultant that we were in safe hands. He explained about all risks etc, worrying times ahead for me and the family but was reassured by the 95% success rate. Once again thanks
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