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      Social media monitoring

      When I was asked to find out what people with hearing loss, tinnitus and deafness were saying about their day-to-day experiences on social media, I had no idea what I would discover.

      By: Nathalie Sfakianos | 09 October 2017

      I’m familiar with Facebook, but had not used forums or regularly read any blogs, and had never signed up to Twitter. The breadth, depth and intensity of the conversation took me completely by surprise. 

      At an early stage I was struck by the fact that there’s a whole world of groups and interests on social media for people who are deaf, while those with hearing loss or tinnitus seem mostly to get together for mutual support and advice on coping day to day. 

      As someone who has both hearing loss and tinnitus, I was drawn to the latter groups. They provide safe spaces for people to say absolutely anything about how they feel about their hearing loss and how it affects their daily lives. I found that fascinating and inspiring. 

      Also, people offer support, empathy, encouragement and advice drawn directly from their own experiences. Anyone newly diagnosed, or struggling for any reason, leaves these sites feeling more cheerful and better able to cope. 

      When a complete stranger shows understanding of what you’re going through, it boosts your confidence. Following conversations over time, I’ve noticed, too, that as people become more resilient, they get better at helping others. These spaces become mutually motivating and supportive communities in the richest sense of the word. I feel privileged to have had even a glimpse into this world. 

      Recent Posts

      Victoria runs Marathon for mother who lost hearing in operation

      Victoria Briand is taking on the London Marathon this Sunday to raise funds for Action on Hearing Loss. The mum-of-three is taking on the big challenge after her mother was diagnosed with a brain tumour and lost her hearing following lifesaving surgery. Since, their entire family’s lives have changed forever. Read Victoria’s touching story in her own words.

      By: Victoria Briand
      19 April 2018

      Jackie Edwards, 60, runs Marathon

      Being a busy grandmother-of-eight hasn’t stopped Jackie Edwards, 60, from taking on 26.2 miles that is the London Marathon this weekend. Hailing from Evesham in Worcestershire, Jackie has been deaf since the age of four and now wears two hearing aids. By running the marathon with her daughter, Bev, Jackie hopes to raise vital funds for Action on Hearing Loss, a charity that is close to her heart.

      By: Jackie Edwards
      18 April 2018

      The latest in hearing aid evolution

      Hearing aids have been around since the 18th century. From the earliest ear horns, they have evolved into what we see today – high tech digital hearing aids. These devices can carry out thousands of digital processes to try and ensure the sound quality is of the highest standard for their users. However, they are still far from perfect, so what comes next? Jesal Vishnuram, our Technology Research Manager, explains.

      By: Jesal Vishnuram
      16 April 2018

      Getting medicines into the inner ear and improving hearing tests – new grants for hearing research

      We’ve awarded new grants through our Flexi Grant scheme, which provides small grants to researchers around the world to support a variety of activities that benefit hearing research as well as people with hearing loss or tinnitus. Tracey Pollard, from our Biomedical Research team, tells us more.

      By: Tracey Pollard
      12 April 2018

      Recent Posts

      Victoria runs Marathon for mother who lost hearing in operation

      Victoria Briand is taking on the London Marathon this Sunday to raise funds for Action on Hearing Loss. The mum-of-three is taking on the big challenge after her mother was diagnosed with a brain tumour and lost her hearing following lifesaving surgery. Since, their entire family’s lives have changed forever. Read Victoria’s touching story in her own words.

      By: Victoria Briand
      19 April 2018

      Jackie Edwards, 60, runs Marathon

      Being a busy grandmother-of-eight hasn’t stopped Jackie Edwards, 60, from taking on 26.2 miles that is the London Marathon this weekend. Hailing from Evesham in Worcestershire, Jackie has been deaf since the age of four and now wears two hearing aids. By running the marathon with her daughter, Bev, Jackie hopes to raise vital funds for Action on Hearing Loss, a charity that is close to her heart.

      By: Jackie Edwards
      18 April 2018

      The latest in hearing aid evolution

      Hearing aids have been around since the 18th century. From the earliest ear horns, they have evolved into what we see today – high tech digital hearing aids. These devices can carry out thousands of digital processes to try and ensure the sound quality is of the highest standard for their users. However, they are still far from perfect, so what comes next? Jesal Vishnuram, our Technology Research Manager, explains.

      By: Jesal Vishnuram
      16 April 2018

      Getting medicines into the inner ear and improving hearing tests – new grants for hearing research

      We’ve awarded new grants through our Flexi Grant scheme, which provides small grants to researchers around the world to support a variety of activities that benefit hearing research as well as people with hearing loss or tinnitus. Tracey Pollard, from our Biomedical Research team, tells us more.

      By: Tracey Pollard
      12 April 2018