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      Social media monitoring

      When I was asked to find out what people with hearing loss, tinnitus and deafness were saying about their day-to-day experiences on social media, I had no idea what I would discover.

      By: Nathalie Sfakianos | 09 October 2017

      I’m familiar with Facebook, but had not used forums or regularly read any blogs, and had never signed up to Twitter. The breadth, depth and intensity of the conversation took me completely by surprise. 

      At an early stage I was struck by the fact that there’s a whole world of groups and interests on social media for people who are deaf, while those with hearing loss or tinnitus seem mostly to get together for mutual support and advice on coping day to day. 

      As someone who has both hearing loss and tinnitus, I was drawn to the latter groups. They provide safe spaces for people to say absolutely anything about how they feel about their hearing loss and how it affects their daily lives. I found that fascinating and inspiring. 

      Also, people offer support, empathy, encouragement and advice drawn directly from their own experiences. Anyone newly diagnosed, or struggling for any reason, leaves these sites feeling more cheerful and better able to cope. 

      When a complete stranger shows understanding of what you’re going through, it boosts your confidence. Following conversations over time, I’ve noticed, too, that as people become more resilient, they get better at helping others. These spaces become mutually motivating and supportive communities in the richest sense of the word. I feel privileged to have had even a glimpse into this world. 

      Recent Posts

      Open for business

      Ewen Stevenson, Chief Financial Officer of RBS began to lose his hearing at 40. He tells us how it affected him and how he overcame it.

      By: Ewen Stevenson
      15 February 2018

      Are headphones damaging our hearing?

      Nearly everyone uses headphones, including our children. But what do we know about the long-term effects? And should we be doing more to protect our hearing? Richard Whitaker, an Acoustic Consultant, tells us more.

      By: Richard Whitaker
      09 February 2018

      Three reasons I hid my disability at work, and how employers can (and should) help change things

      Jennifer is from York. She has a daughter, a partner, and works as a Business Coordinator. She’s had hearing loss since birth and wear two hearing aids.

      By: Jennifer Stanley
      17 January 2018

      Tackling the loneliness of hearing loss - putting the business case

      Loneliness costs businesses £2.5bn a year. Our Director of Policy and Campaigns, Roger Wicks, makes the link between hearing loss and loneliness, and suggests changes to support employees.

      By: Roger Wicks
      12 January 2018

      Recent Posts

      Open for business

      Ewen Stevenson, Chief Financial Officer of RBS began to lose his hearing at 40. He tells us how it affected him and how he overcame it.

      By: Ewen Stevenson
      15 February 2018

      Are headphones damaging our hearing?

      Nearly everyone uses headphones, including our children. But what do we know about the long-term effects? And should we be doing more to protect our hearing? Richard Whitaker, an Acoustic Consultant, tells us more.

      By: Richard Whitaker
      09 February 2018

      Three reasons I hid my disability at work, and how employers can (and should) help change things

      Jennifer is from York. She has a daughter, a partner, and works as a Business Coordinator. She’s had hearing loss since birth and wear two hearing aids.

      By: Jennifer Stanley
      17 January 2018

      Tackling the loneliness of hearing loss - putting the business case

      Loneliness costs businesses £2.5bn a year. Our Director of Policy and Campaigns, Roger Wicks, makes the link between hearing loss and loneliness, and suggests changes to support employees.

      By: Roger Wicks
      12 January 2018