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Tinnitus > How we got through it .. Success stories

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#1 Posted : Thursday, February 09, 2012 2:54:17 PM
Rank: Administration


Joined: 2/3/2011
Posts: 55
Success Stories

Hello and welcome to our forum. We have a large catalogue of posts about a huge range of issues relating to Tinnitus and we have picked our a few success stories for you here. Have a read but don't let that stop you asking your own questions and getting support or advice for your own unique situation.

Please do leave a reply if you found a thread or this post useful!

Best Wishes

The Helpline Team

Woke up today... Two years on and is now able to manage his tinnitus.

Tinnitus 3 years on, a positive story Suffers with Tinnitus and hyperacusis but has learnt not to emotionally react to the tinnitus tinnitus and is now able to get on with life.

My positive experience Neurophysiologically-Based Management (NBM) a real success.

On the road to recovery... (BIG thanks to Bob T): Tinnitus sufferer shares coping techniques that helped her to habituate.

So pleased!!!! -) A happy tinnitus sufferer as the pink noise worked.

Learning to live with tinnitus A combination of things that helped her come to terms with tinnitus.

Things that helped Tinnitus sufferer shares how she moved along the path of habituation.

My story Tinnitus is gone and is now happy, habituated and relieved.

Jim Smith Heres my habituation story: Habituated and coping emotionally with Tinnitus after having it for 8 years

A positive update: 21 years old with tinnitus and learnt to ignore it.

My tinnitus has gradually got better
: Great support from the online community; helping one individual tackle their Tinnitus

Long time no see, My Story Tinnitus sufferer who got tinnitus following a concert comes back to the forum to share their thoughts after overcoming their tinnitus.

Don't Give Up - A Thread of Inspiration
: A couple of great positive stories from those with Tinnitus

A positive tinnitus story
: One person’s habituation story after 15 years with Tinnitus

Yet another positive post: A great inspirational post offering much hope and encouragement to others

Newbies read this Understanding more about tinnitus can go a long way to helping you habituate.

Some steps to fight anxiety/depression A step by step guide to help fight anxiety and depression which in turn can help your tinnitus.

Hi again and thanks A fine example of how this forum can help to support others.

Life gets better even if T doesn’t!! A positive outlook on living life with Tinnitus

…..Finally…..Relief….. One tinnitus sufferer finally overcoming his tinnitus after 10 years

Some encouraging news for people Some great information and suggestions for those with tinnitus

New found optimism 19 year old guy with tinnitus share how he continues to enjoy live music thanks to suggestions from forum members

My T is quieter than ever
Another Tinnitus sufferer who’s tinnitus has reduced over a year

If you suffer from tinnitus – Read this One individual who took charge of their tinnitus instead of letting their tinnitus take charge of them

My Tinnitus is gone- My Story!!
Tinnitus sufferer was busy and stressed but can now cope

Some words of encouragement!!
Tinnitus was caused by gun fire - he can now enjoy life and laugh again

Not a cure but this has helped me Changing my diet and cutting out sugar has helped reduce my tinnitus.

Dr Nagler’s ‘Letter to a tinnitus sufferer’ A letter to a tinnitus suffer from Dr Nagler offering words of encouragement on how to cope

Getting over tinnitusTips that helped someone through bad times of tinnitus

My Story How tinnitus can get better after suffering with anxiety and depression

A successes story…. The story of how a tinnitus sufferer finally habituated

It will definitely get "better"
- How TRT helped someone turn their life around.

Tinnitus - an emotional response. Fear made my tinnitus worse- 4 years ago I was suicidal because of tinnitus, today it doesn't bother me one iota :) x
ChristopherChance1
#2 Posted : Monday, February 27, 2012 8:44:34 AM
Rank: Newbie


Joined: 2/27/2012
Posts: 1
I've posted this a few places today, so why not.

This is my first time I've discussed my tinnitus so openly, but I really hope i can help someone. Specifically this note is for those of you who where I was 6 short months ago, Suddenly finding yourself saddled with something you don't understand and could not make sense of.

People's reactions to T vary wildly from minor annoyance to soul crushing depression, I'm guessing by the fact that you are here means you fall a little latter on that scale like I did. I would spend countless hours googling T and every possible combination of words I could think of.(seriously you have to stop doing this) I thought for sure they had to be a cure for this, I simply couldn't imagine living the rest of my life like this. If only I could find out exactly the cause I could reverse it, but as many of us learned, such a fix rarely comes.

You may think that nobody can understand the pain you are experiencing. Believe me I did. The world kept moving around me and here I was constantly on the verge of a breakdown. To make matters worse it has very hard to get someone to understand exactly how debilitating T can be, most people thinking a little ringing in the ears couldn't possibly be that bad. Congratulations for not punching them in the face, unless you did, in which case....good job.

Before I start dolling out advice like I'm some kind of expert( I'm not). I just want you, the newcomer, to trust I know what you are going through, I know what it's like to spend hours in the shower to make the sound stop just for a while. I know what it's like to contemplate suicide. I know what it's like to look at my home surroundings that used to be so comfortable to me as a mockery of the happy life I used to have. I missed silence more than I ever imagined. My sense of loss was constant and profound

I felt terrified at just the idea of this being forever, I felt guilty about whatever I didn't do to protect myself from this, I felt anger at myself that I didn't appreciate how lucky I was before, and I was overwhelmed with a sense of regret and a deep sense of injustice. I thought I was a fairly decent person, So I didn't believe my life should basically be over at age 26.I know these perpetually negative thoughts too well. They just cycle through your head over and over again. Until ,believe me, someday they don't

I still remember the desperation, I would have done anything to stop the noise in my head. Including such brilliant methods of roughly banging my head of the wall (to jostle the brain a little), standing right in front of the loud speaker at a music show, and placing my ears directly under the high powered shower stream. Those of you with brains will recognize these methods are the opposite of helpful, but that's desperation for you.

The good news is coming. To say it gets better is an understatement. When you read about people talking about their T online it's usually because they are still in desperation mode too, those of us who have essentially moved on with our lives don't lend our voices to the crowd enough. As a result the new T sufferer may get the impression online that they are the newest member in the world's most depressing club. Please believe me, your T will become less and less of a force in your life until it's only occasionally and mildly annoying, if that.

So how did I get better? Apart from the obvious force of time. You have to get ready to really grapple with yourself and exactly what are going though. Science hasn't helped us much, the best doctors can really do is prescribe you anxiety or sleeping pills if you need them. You have to face this battle yourself, try to reason your way out of the pain as best you can, if it's still hard for you to do it's no biggie, in time you will.The human brain just is not wired to be miserable forever. We have this thing called neural plasticity, so the longer you live with T, generally speaking it will become less and less noticeable.

But how does all this effect you now? You can start with a few exorcises I found helpful. First, identify the sound correctly on a rational level and hope your subconscious follows. The odds are incredibly strong that the noise we are experience is a normal process in the brain and that normal people experience it too. When they stretch in the morning, when they spend a long time in a noisy environment, or if they are in a truly silent rooms. I personally remember these short bursts of the sound in my pre-T life. So what does this mean for you? Right now you are reading the sound as a foreign intrusion that is just messing up your hearing, when really we are just experiencing an amplification of a naturally occurring process. Does this make a real difference? On a subconscious level I think it does, the sound doesn't seem quite so alien, and that at least helps to know there's not something seriously going wrong with your hearing .

I've saved my most important recommendation for last,but honestly believe that masking (along with a good anti depressant) saved my life. You see most of us can mask the sound of our T with static white noise such as this

http://www.youtube.com/watch?v=1KaOrSuWZeM

There are a million ways to alter the sound and volume to a level that suits you, but I burned a CD of just white noise and I had it constantly playing wherever I was for months. Some people will advice against it because it is only a "band aid" that does not address the real issue and help you toward habituation. Let me just tell you, that view seriously underestimates the importance of band aids. Sometimes you have to stop the bleeding before you can heal the wound.

If you are feeling stressed by the T, then the masker, while not perfect, will at least give you some control over it.

And this is an important part of it. As hard as it may be to you now to understand, the sound itself actually the problem. Objectively speaking the sound should be a small (and mostly subconscious) annoyance at most as shouldn't interfere with any of your activities. It's what the sound REPRESENTS to you that fills you with dread. It's the idea that there is nothing you can do about it, we humans like our freedom of autonomy and T violates so much of what it means to us to be a free person. This is why using a masker like white noise gives a little control back to you. You can go about your routine but always know that a few feet away is a cd player that will play a sound that will let you get your relax on back for a while.

And that's what you really need, relaxation. With most of life's challenges at least you usually get a cool off period to calm yourself down, that's what masking will do for the vast majority of you.

And I'm here to tell you, anecdotaly at least, that masking has long term benefits as well .I masked constantly for months, I could never imagine not having to use this noise though, until one day I just realized I could. The white noise made me perceive my sound as coming from an outside source, which is much easier to deal with. So now that I've stopped masking, most of the time my T subconsciously registers as background noise. It really is a miracle that I hope many of you can replicate . I do still use the masking on rare occasions when I'm watching a movie or something and I'm noticing the T, but then I just flip the masker on for a few minutes and I'm good to go again.

I have to be honest, I'm only 6 months into this so I'm hardly a guru. I think I've made tremendous progress in only 6 months (that feels like 6 years), but I still occasionally get a little down about it, but these moments are getting rarer and shorter lived. I have full confidence that I'll be 100% the old me in 6 more months.

So please, know these dark early days WILL pass. I know it's painful, it's the hardest thing I've ever had to do, but you will get your life back. The simple pleasures. For me it's a warm shower in the morning and the companionship of my fiance and two wonderful little dogs. Almost ever day now I have a moment when I feel happy to be alive, and honestly I couldn't have even said that before the T.

So I hope you go to bed tonight and sleep a little better knowing that this pain, as vivid and heart wrenching as it may be, will be gone someday soon. And as an added bonus, life's little problems won't seem so important anymore. If a naturally pessimistic and frequently depressed person like me can find joy in life post T-pain (kinda pun?) then anyone can. If you need help please reach out to the many wonderful people around the web who have gone through the same thing you are, and if you need any clarification or have any questions for me I'll hang around here for that too. Peace.

-Christopher
Rachel (Information Officer)
#3 Posted : Wednesday, February 29, 2012 11:58:24 AM
Rank: Senior Member


Joined: 6/16/2011
Posts: 308
Dear Christopher,

Thank you for posting your success story on our thread.

Your openness is truly inspiring and great to read. We know this will help a lot of people on our forum to cope and know there are ways on managing their tinnitus.

Thank you again,

All the best
Action on Hearing Loss Helpline
Information Line Officer

Telephone: 0808 808 0123
Text phone: 0808 808 9000
SMS: 0780 0000360

information@hearingloss.org.uk
TOTALLYDEAFandTINNITUS
#4 Posted : Monday, April 23, 2012 1:33:13 PM
Rank: Senior Member


Joined: 6/8/2011
Posts: 422
Had My T from age 5, with Soldiers marching continously in L ear R ear was silent til I had Operation, now its non stop in L ear Hisss LOUD, and a mixture of noises in R.. But I WONT gIve up.
StuKemp1
#5 Posted : Sunday, May 13, 2012 12:35:05 AM
Rank: Newbie


Joined: 5/13/2012
Posts: 2
I had/have a similar experience, what I do is listen to talk radio to take my mind off the sound and the thoughts, it helps me.

Thanks for your letter
Kevin L
#6 Posted : Sunday, September 30, 2012 11:16:10 PM
Rank: Newbie


Joined: 9/30/2012
Posts: 1
Hi Christopher Chance,

Are you still around this forum? I am new here and unfamiliar with how to contact members directly, but I was quite inspired by your success story and I would love to have some more dialog with you. I recently was afflicted with tinnitus and I am always on the lookout for inspiring success stories and yours struck me as especially pertinent.
Thanks,
Kevin
Denisehoward1
#7 Posted : Monday, July 01, 2013 11:23:45 PM
Rank: Newbie


Joined: 7/1/2013
Posts: 5
As far as I know I was born with t. Didn't realise that not everyone hears them.
Use to get me very cross when I was little as it could keep me awake with being so loud!
I'm 59 now and you know what? You can get use to anything given time.
Now that dog barking outside my bedroom window , thats another story!
Emma (Helpline Officer)
#8 Posted : Monday, July 22, 2013 12:29:17 PM
Rank: Senior Member


Joined: 6/17/2011
Posts: 558
My Story

By Steph.E
nancysmith2
#9 Posted : Thursday, February 20, 2014 5:42:58 PM
Rank: Newbie


Joined: 2/20/2014
Posts: 1
I am not selling anything. I receive no monetary reimbursement for anything I post. Only to let others know of my success. I have been suffering eleven years not only from very painful tinnitus but in that it also affected my ability to eat most foods. I went to a Naturopathic Clinic; 3 different allergists during the course of time, three various natural doctors all to no avail. I finally came across a Dr Paul E Robbins BD, AD @ the Big Sky Natural Wellness Clinic, Inc (Montana) and he has brought me so much healing. I will not tell you the method because he uses various methods depending upon what or how the person is suffering -- one size does not fit all with him! My level of tinnitus from usually a 8 to 10+ (ten being the worst) is now usually 2 to 6 (odors and some foods trigger still) and is becoming better with each treatment. Last night my head and ears no longer felt like they are clogged. Last weekend was the first time in eleven years I went to the buffet and ate to my fill (very seldom full throughout these years) without negative side effects -- including five pieces of pizza which I absolutely cannot do because of the cheese I think -- I had so many negative reactions from foods a diary was pretty much impossible. He has also helped the bad back and bad leg/foot that a chiropractor hurt. I initially went to him not for the tinnitus (as I had pretty much given up) but that the chiropractor I was attending said he could not do anything for the torn rotor cuff. I could not do surgery because of sensitivity to all chemicals and medicines; he just shrugged it off. I could hardly lift my arm and when I did it was with help of the other arm and then with great deal of pain. I accidentally came to Dr Robbins, through no referral -- just a 'have to do something' and a point of the finger in the internet phone book. He had actually moved into this area just recently. Within a couple months I could lift my arm and begin to dress normally again. Now I can lift my arm without other arm assistance over my head and behind my back.
But the even more important part is my head -- my poor aching head and lack of being able to eat. Walking into a store where there are scented candles; the pine cones; flowers -- horrible pain.
Now my mother-in-law and sister-in-law also attend him with success stories of their own. Even if you do not live in Montana, I encourage you to contact him (406-281-8200) (bigskynaturalwellness@gmail.com) (www.bigskyclinic.com) because he can also treat people long distance. I am so very grateful to him I cannot even begin to tell you. I am a very happy camper!
TOTALLYDEAF
#10 Posted : Sunday, June 29, 2014 8:31:13 PM
Rank: Newbie


Joined: 6/20/2011
Posts: 10
Hello Please excuse me Im not being rude but how many what have got through Tinnitus and cope are Totally Deaf. Im into month 3 of VERY VERY BIG Spike, even it lowered its still not nice. Ive tried all sorts relaxations, Massage, trying to keep busy but Balance stops a lot of that. Im losing plenty Sleep etc the list is endless.

CJ Totally Deaf and Tinnitus
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